Last updated: August 17, 2026
Atypical Rett syndrome
is a neurodevelopmental disorder that is diagnosed when a child has some of the symptoms of Rett syndrome but does not meet all the diagnostic criteria. Like the classic form of Rett syndrome, atypical Rett syndrome mostly affects girls. Children with atypical Rett syndrome can have symptoms that are either milder or more severe than those seen in Rett syndrome.
Organizations Supporting this Disease
Organizations Supporting this Disease
International Foundation for CDKL5 Research
P.O. Box 926
Wadsworth, OH 44282
Telephone: 330-612-2751
E-mail: http://www.cdkl5.com/Contact/Default.aspx
Website: http://www.cdkl5.com
International FoxG1 Foundation
6505 Hillock Lane
Pearland, TX 77584
E-mail: [email protected]
Website: http://www.foxg1.com/
Rett Syndrome Research Trust
67 Under Cliff Road
Trumbull, CT 06611
Telephone: 203-445-0041
Fax: 203-445-9234
E-mail: [email protected]
Website: http://reverserett.org/
Rettsyndrome.org
4600 Devitt Drive
Cincinnati, OH 45246
Toll-free: 800-818-7388
Telephone: 513-874-3020
Fax: 513-874-2520
E-mail: [email protected]
Website: http://www.rettsyndrome.org/
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